Doctors Visits

Before I forget (and it has been a LONG time since I’ve blogged about my doctors visits), let me update you all on what’s been going on in my Lupie world.

Monday, I went to visit my hematologist.  I’ve been seeing him since May of this year because back in March my primary care doctor had some major concerns about my White Blood Cell (WBC) count and how it was in the chronic stage.  After my initial consultation, and reviewing all of the bloodwork ordered, they told me I had Leukopenia. My WBC was 1.6 (Normal range is 4.8-10.8) and my Neutrophils was 0.7 (Normal range is 2.496-8.424).  After seeing him 4 times since then, and either being off of my meds for an extended period of time, or having the meds reduced, or back to my last known regimen, my numbers have gone back up into the normal range.  The conclusion is that my medications are more than likely the cause of my numbers to go low (which is not uncommon).  My WBC is now at 4.92 and my Neutrophils is 3.552.  Both are back to normal!!! Woooo hooooo!!!  So, I won’t be seeing him again anymore unless my rheumatologist feels it is necessary! (Great saves me $45 a visit plus 20% of the cost of all lab work!)

Today, I went to see my rheumatologist.  This is not the same one that I spoke about in previous posts.  This particular doctor I have been seeing a little over a year and I really like him.  He’s very nice and extremely patient when it comes to answering my millions of questions.  Well, today, he reviewed the information from the hematologist, checked my right knee (which has been giving me problems for quite some time now), and adjusted my medications (I’ll post that info at the end).  He also recommended that I am put on an anti-inflammatory/pre-diabetic diet.  I also need to exercise 3 days a week (I need to lose weight!).  However, due to my knee issues, I cannot do squats, lunges, walk the treadmill or use an elliptical until I can strengthen my quads.  My right knee moves left and right, which he says should not happen and it’s more than likely due to weakened quad muscles.  His suggestion: use a stationary bike and a leg press machine.  Thankfully, my home gym has both of those.  I just need to be sure I schedule that time in my planner and stick to it!!!

I already started looking up different foods/recipes to add to my weekly meal plan.  I really have to get serious!  I can’t let Lupus keep taking over my life!  Anyway, as promised…

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My current regimen as of November 21, 2018:

 

  • 200mg of Plaquenil 1x/day
  • 4mg of Prednisone 1x/day
  • 500mg of Turmeric 2x/day

The turmeric is new to my regimen/diet.   After reducing my Prednisone from 5mg to 4mg, he told me to take the Turmeric capsules and to treat it like a medication.  I have to take one in the morning and one in the evening.  Also, I haven’t taken my Imuran (for the Lupus Nephritis) since September.  We are sticking with that plan for now. I will follow-up on December 26th to see how the new regimen (which includes exercise) is working out for me.  I also need to be down at least 2 lbs by then. Whew!!

That’s all for now…

Until next time…

Lupie Momma Sig

She Designed a Life She Loved

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Recently, I took the plunge and bought a Happy Planner and a ton of stickers to go along with it.  Why? Because after reflecting on my life and all of the things that are going on in my life, I decided that my best days were the days where I had a plan instead of flying blindly.

When I was in grad school, I faithfully used a monthly/weekly/daily planner.  At that time in my life, I had to juggle school, motherhood, and part-time work.  For school, I had to make sure I made time to not only attend classes but, to study, do research, read, write papers, etc.  For my daughter, I had to make time for her growing social calendar of play dates as well as her basic every day needs.  I made time for exercising.  I made time to read books for a book club I was in and attend our monthly gatherings.  At the time I didn’t feel like it was very overwhelming (unless it was when I procrastinated on my school assignments…sigh!) because I wrote EVERYTHING down and made sure I didn’t overwhelm myself in each day.  Not to mention I did all this while still taking care of myself and my Lupie needs.

I have not dedicated the time to use a planner in over a year and I am starting to feel like things are all over the place.  I find myself saying that I don’t have time for this, or time for that.  At times I am tired from trying to take on more than I can handle in one day.  My Lupus has been flaring left and right and it may be due to lack of appropriate rest and/or exercise. I haven’t been cooking as much as I used to. I have even gained unwanted weight.  UGH!

I need to get my life back on track.  I need to get organized.   I need to get back into using a planner.  I decided to go with the Happy Planner because it is customizable.  There are so many expansion packs, accessories, and stickers to go along with it (that’s going to make it one expensive hobby!).  I’ve already started setting it up and have fully planned for this week. (Can we say, “TEACHERS ON BREAK!!!! YEAY!!!!) 🙂

I’m so excited about my planner and I hope I can dedicate myself to planning like I once did before.  Balancing Lupus, motherhood, teaching, church, and my personal life is no joke without a plan.

Until next time…

HAPPY PLANNING!

Lupie Momma Sig

I just needed to write…

It has been quite some time since I’ve written in my blog, but as I am sitting here heating up my knees (so I can get some comfort and feeling back into them), I decided to just update you all on how Lupie Momma’s life has been going.

Well, I am in a midst of a Lupus flare. OH BOY!!  I’ve been dealing with body aches, joint pain, and sleepless nights for a couple of weeks now.  On top of that I have been experiencing sinus issues, which landed me in the doctor’s office, along with, 3 medications (Montelukast Sod, Azelastine, and Claritin) added to my daily regimen.

I haven’t been blogging my symptoms like I should, but I have been posting on FB and letting people know what’s going on with me.  Some people think I do it for pity, but I really do it for myself.  For me to see what I’ve been through and how I’ve overcome it.  Anyway, I will say that I appreciate all the people that care about me, those who reach out to me asking how I’m doing, or those who offer their help, or those who just offer up a simple prayer on my behalf.  While most people have no idea what it feels like to experience constant pain as you go throughout your day, it is comforting to know that they send their well wishes and/or prayers.

Many days, I just go on suffering in silence.  I just go throughout the day, just praying I can make it to the end without any major issues.  I still enter my classroom with a smile on my face, letting my students know that I am still happy to be there, while many are clueless to the silent winces I may make as I walk around the room assisting as needed.  I still answer my phone and listen to people talk about what’s going on in their lives and the things that they are going through.  I still help my daughter with her homework and make sure she has food to eat and clean clothes on her back.  I still do all the things I normally would and try to wait patiently for the day that the pain subsides.

In my mind, I am still young.  In my body, I am MAD old.  LOL! But, I still feel like I have a whole life ahead of me and a bucket list of so many things I want to do and see. Every time Lupus tries to get the best of me I think about those things.  I think about my goals, my dreams.  (For starters, I REALLY need to lose 30 pounds.  I also want a new car).  I think about the day that I can finally say I am Lupus Free!!!

There’s so much more I want to talk about and should talk about in this blog, but for now I will stop here.

Until next time…

Lupie Momma Sig